Yesterday was Cate's first birthday! She had her check-up, and the doctor said she looked great. She weighed in at a mean 18 lbs. 8 oz (10th percentile) and was 29 in. long (50th percentile). He is pleased with her growth and development.
In other news, we're still waiting for the UBE3A test results for Will. The doctor at Baylor said it would take 3-4 weeks, and it's been 2. Pray that I have the patience to wait another week or two without going nuts. More updates to come.
Fantastic News!!!
Get this! We have been trying to get this special bed for Will for about 6-8 months now. Our insurance company denied it and said it wasn't covered under our policy. The bed costs $6000, which we cannot afford. We have been trying really hard to figure out something else to do because he is too big for his crib, and it is no longer safe for him to sleep in. Well, yesterday we got a call from the medical supply company saying Will's bed was in and they needed to set up a time to deliver it and set it up! Jeremiah spoke with them today, and they're going to deliver it tomorrow morning at 9:30!!! I don't know who paid for it or if our insurance or Will's medicaid changed their minds. I really don't care. I can't believe we're getting this bed. It truly is a miracle!!! More updates to come.
Mostly good news this time
So, an update on the kiddos. First of all, Will didn't have to get glasses this visit. We're thrilled because we had no idea how we were going to keep them on him. The opthomologist said he looked pretty good right now and that he'd see us back in June. I guess we'll wait and see what he says at that visit about glasses, but for now, we are glasses free! Secondly, Cate gained another 4 ounces! Hooray! She is around the 7%, which is where she was at her last weight check. She really seems like she's doing well to me. She finally looks like she's filling out some. Her appetite certainly isn't the problem. She eats like a little piggy. Dr. Pfanstiel seemed happy with her weight, and we certainly are. Now for the tiny bit of bad news...Cate will be getting tubes put in her ears on Monday. The doctor we saw today is super nice and was able to get the surgery done quickly. It's not a major surgery, but it is a surgey. There is still anesthesia, so there is still a small risk. Pray that the doctors will do exactly what they are supposed to and that the Lord will guide their hands as they work on Catie Bug. Pray that this surgery will correct her problem and that she won't need any more antibiotics or surgeries. Finally, pray that her recovery goes smoothly and that we don't have any complications. I'll update you after her surgery.
More Surgery
Again, sorry for the delay in posting. My life is going ninety to nothing right now. I hardly have time to eat or sleep, much less blog. Anyway, I took Cate to the doctor today because she has had an ear infection for almost 3 weeks and is still pulling at her ear, running fever, and very fussy. So, the doctor said her ear doesn't look infected anymore, but there is a lot of fluid in her ears and she's going to need tubes. I'll call the ENT office tomorrow to make an appointment for her. I guess we'll find out more at that time. Just be praying that Cate will feel better.
Will goes to the opthomologist this afternoon and we will most likely be getting glasses. I'm dreading that. I don't know how in the world we're going to keep them on him. I guess that's another prayer request. I'll post again (hopefully soon) and let you know how this goes.
Good news, bad news
Cate went to the doctor today. It was good news and bad news. Good news first - she gained a pound!!! I couldn't believe it. I mean, she only gained 3 ounces over the last 3 months, and then she gains a pound in 3 weeks. Hooray!!! Bad news - she has her third ear infection in 3 months. It looks like she may be on her way to getting tubes. I hope not; I hope she won't have any more infections. But, if she has to get them, she has to. I just hate the thought of my baby being put under anesthesia. Pray that her ear will heal and that she won't get any more ear infections.
Will is doing great! Ever since his surgery, he has hardly spit up at all. He hasn't spit up in probably 2 or 3 weeks now. The only time he spit up after the surgery is when he still had some swelling and tried to eat something too big. He's pretty much back to his old self, which I love. He is really trying to learn some words. His most recent advance in his speech is the word "ouce." In our language, this means ice cream. The reason he says "ouce" is because I call it ouce cream (like Michelle Tanner on Full House!). I ask him, "do you want pudding or ouce cream?" and he says, "ouce!" He is running, and jumping, and in constant motion. Continue to lift him up as well.
As always, more updates to come.
When it rains, it pours!
So, Cate had her 9 month well child check last week, and she only gained 3 ounces in 3 months. That's not good. She fell to just below the 5th percentile on the growth chart. Again, not good. Her head fell from 75% to 25%. And, to top it all off, her pediatrician thinks she is delayed in her motor skills and recommended that she start physical therapy. Jeremiah and I thought she was doing well - she is light years ahead of where Will was at this age. Apparently that's not good enough. Now we're trying to find a physical therapist for her. The state's early intervention services suck. They were totally worthless with Will, and if we hadn't gotten him private therapies, I'm convinced he'd still be sitting like a lump on the floor with no communication skills at all. Anyway, the point is, I was expecting a great report and got the opposite. Please pray that Cate will grow and be healthy. Pray that whatever is causing her not to properly process the tons of food she eats each day will go away. Work is also totally stressing me out right now. I'm really trying to do my best, but a coworker keeps making mistakes that I get blamed for. Pray that this situation will be resolved with my bosses knowing that I'm doing my job. Pray for patience, because I really really need it right now. I also need strength and encouragement to deal with all of this. So, I guess pray for that too. Cate goes back for a weight check in about 5 weeks. Hopefully she will have gained good weight. More updates to come.
I feel like we live in the doctor's office!
So, the kids have more doctors' appointments this week. Will goes to the surgeon on Tuesday for a post-op visit and to hopefully get his feeding tube replaced with a mickey button. Then, Cate goes on Thursday to the pediatrician for a hospital follow-up and her 9 month check-up. Finally, Will goes to the geneticist on Friday afternoon. The neurologist he saw in Little Rock said we should definately see a geneticist with the combination of his delays and seizures. Anyway, I'll try to post again soon when I have more news. Pray for us this week...that we make it to all the appointments and that we get good news!
